The International Gaucher Alliance (IGA) is seeking a skilled and motivated Operations Officer (Communications & Administration) to support its global mission through effective coordination, communication, and organisational excellence. This remote role is ideal for professionals with strong administrative and communication skills who are passionate about working within the non-profit or healthcare sector.
The successful candidate will be a confident and empathetic communicator, capable of liaising with international stakeholders and managing multiple priorities efficiently. Excellent written and verbal communication, along with outstanding organisational skills and attention to detail, are essential for success in this role.
Experience in administration, communications, or charity operations is required, while proficiency in Canva, WordPress, or similar digital tools is highly desirable. This is an excellent opportunity to make a meaningful impact in an international charity that supports rare disease communities worldwide, while developing your professional skills in a supportive and mission-driven environment.
Position: Operations Officer (Communications & Administration)
Salary: Up to £17.50 per hour
Job Type: Full-Time
Location: Remote
Full job description
To support the CEO and wider team by managing communications, member engagement, and administrative processes. The postholder will help deliver regular communications, maintain accurate records, and ensure the smooth running of the charity’s day-to-day operations.
Responsibilities
Communications & Engagement:
- Plan and coordinate weekly newsflashes and quarterly newsletters.
- Support social media and website updates, maintaining consistent tone and branding.
- Liaise with member organisations and partners to gather stories, photos, and updates.
- Ensure contact lists and databases are accurate and GDPR-compliant.
- Support International Gaucher Day (IGD) and other awareness initiatives.
Administration & Coordination:
- Schedule and prepare materials for board and committee meetings; take and distribute minutes.
- Manage general enquiries, membership forms, and contact submissions.
- Maintain and update organisational files and templates in Google Drive.
- Support the CEO with elections, policy reviews, and member updates.
Operational Support:
- Coordinate documentation and follow-up with country representatives and partners.
- Track and report volunteer and staff hours for impact reporting.
- Assist in preparing annual reports and communications summaries.
Person Specification
Experience:
- Experience in administration, communications, or charity operations.
- Experience working with people living with a rare disease or within a patient advocacy charity (desirable).
Skills & Knowledge:
- Strong written and verbal communication; excellent organisation and attention to detail.
- Ability to manage multiple priorities.
- Experience using Canva, WordPress, or similar tools (desirable).
Communication:
- Confident and empathetic communicator, able to liaise with international stakeholders.
- Experience supporting awareness campaigns or newsletters (desirable).
Technical:
- Competent with Google Workspace or Microsoft Office.
- Understanding of GDPR and data management principles.
Attributes:
- Proactive, reliable, and comfortable working independently in a small team.
- Knowledge or understanding of the rare disease community and its challenges.
Application Process
To apply for this role, PLEASE VISIT HERE
Application Deadline
October 31st, 2025